Thank you for the replies
Lotte, sorry I couldnt get to answer you previously, I can only get on when the children go home, then before I know it its 9 pm I do appreciate you doing that for me, it was very kind of you to take the time to do it. Of course the answer is right that the doctor gave, and I do always see a rheumatologist but unfortunately my rheumy seems to be a little indecisive!!
Lyn, thank you, I really feel I am being pulled from pillar to post here. My usual rheumatologist is a lovely guy, but he seems overly cautious, I am very much aware of the fact that anti-TNF isnt taken lightly, and can have awful side effects, and of course, dont always work, but how do you know if you dont give it a try? I'm very concerned that he sits and looks at me and then puts his head in his hands, shakes his head, leans forward and says I really dont know if we should do this, meaning the anti-TNF.
Ann, thank you for replying, I have always gone to Guy's for everything as I live within 2 miles of the hospital. I did attempt to change to the Royal Free, but I culdnt manage the underground as its mainly the old stations and there are loads of stairs with no lifts or even escalators. The consultant there was lovely, I saw him privately first and he immediately diagnosed me and sent a letter to Guys for me re treatment, which they kind of took the advice but not entirely. I saw him privately at London Bridge Hospital, but couldnt afford to continue to see him there.
He wants to do the scan to check how much inflamation is in my hands, if it isnt much he wont put me on the anti-TNF. My next appointment at the clinic is 24 November, when he should finally decide what to do.
How did you manage with the bursa Lyn? I am finding it hard to get out of bed, all night I cant move due to pain, it wakes me so many times in the night that when the children go home I end up taking a nap, then eating dinner at 8 and not wanting to go back to bed until 11 Sitting here now my hands are beginning to swell and feel painful, so who knows what he will do?
I am going to try to see one of the senior gps in my practice and get my anaemia sorted and hopefully some sensible pain meds even for just at night.
Ok, well, thats about it, and once again thank you for all your help everyone, its always good to know I can vent on here, and people understand x
BARBARA
